April 2011


Gemma has had another really good month with no issues, things are going so much better than we thought they would, especially with Charlie going back to work, but we have settled into a good routine.  The weather is getting nicer, we are going out for more walks and looking forward to Summer. 

This month our friend Marie (Josiah's mom) came to visit with her daughter Joelle, and it was Gemma's first play date.  It was great to visit with them and see Gemma interact with another baby, something she hasn't been able to do after spending most of a year in hospital. 

On the 25th my family came over for Easter dinner and Charlie baked a bunny cake, which sort of looks like half pig but he gets credit for the attempt.  Gemma and her cousin Sydney were cute in matching purple plaid dresses. 

We are still visiting Childrens hospital at least every week or two, so many clinics!  We took Gemma in for her Ophthamology appointment and she was seen by two specialists.  We were excited to hear that Gemma's eyes were advanced for her age, with having a muscular disorder she relies on her eyes to explore and communicate, therefore have developed to that of a 2-3 year old.  This good news was followed by some not so good news, that Gemma has a condition where her eyes turn in and would need to wear glasses to prevent them from becoming cross eyed.  That very afternoon she was being fitted for glasses.  We must admit the glasses are cute but quickly became a huge pain.  It is very challenging to keep glasses on a one year old, even with a muscular disorder she is already learning how to get them off.





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