Hi everyone,Gemma is 9 days old and weighs 1560gr (3lbs 7oz).
Gemma has been doing well. The last few days have been a bit challenging as her blood pressure and heart rate have increased so they decided to put her back on morphine and increase the ventilator settings.
A few days ago Gemma was doing more breathing on her own but now she will be set back a few days until they decide to take her off morphine.
Gemma seems to be more aware so between her moving more often and having diaper changes these things are probably irritating her fractures, so they have her sedated so that she can rest. It is hard not being able to see her awake but it is best to keep her comfortable. We are trying to keep her calm as she has been getting irritated easily.
Gemma has jaundice again but they only put lights on her for one day. They shaved a small section of her head to try and insert a PICC line but luckily today the doctor agreed with me that it is something we can hold off on and might not need to insert it if they can continue using her current IV line (because she will be on 'full feed' in four days and they can discontinue her other lines then). They also agreed with me that we can space out her weighings so she has less movement (to help her from being uncomfortable).
Gemma's femur fractures should be healed in another week or two and hopefully we will find out from orthopedics when she will get her next x-ray to check on the progress. Monday we will receive news of the test results, I read a bit about the conditions they are testing for (SMA, Myotonic Dystrophy) and we hope the results back negative.
Gemma has been doing well. The last few days have been a bit challenging as her blood pressure and heart rate have increased so they decided to put her back on morphine and increase the ventilator settings.
A few days ago Gemma was doing more breathing on her own but now she will be set back a few days until they decide to take her off morphine.
Gemma seems to be more aware so between her moving more often and having diaper changes these things are probably irritating her fractures, so they have her sedated so that she can rest. It is hard not being able to see her awake but it is best to keep her comfortable. We are trying to keep her calm as she has been getting irritated easily.
Gemma has jaundice again but they only put lights on her for one day. They shaved a small section of her head to try and insert a PICC line but luckily today the doctor agreed with me that it is something we can hold off on and might not need to insert it if they can continue using her current IV line (because she will be on 'full feed' in four days and they can discontinue her other lines then). They also agreed with me that we can space out her weighings so she has less movement (to help her from being uncomfortable).
Gemma's femur fractures should be healed in another week or two and hopefully we will find out from orthopedics when she will get her next x-ray to check on the progress. Monday we will receive news of the test results, I read a bit about the conditions they are testing for (SMA, Myotonic Dystrophy) and we hope the results back negative.
Thank you for your continued thoughts and prayers, we will keep you posted.
Love Amanda, Charlie & baby girl Gemma
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