Gemma is 4 months old (2 months corrected) and weighs 9lbs 7oz.
Gemma is growing bigger and stronger by the day. It is hard to believe how far she has come and all of the difficulties she faced. We know that she will have many challenges ahead but we are taking things day by day.
Gemma remains on a ventilator but we have been weaning her settings and she has been doing quite well. We have been told that with her brain and muscular conditions that she shouldn't be as far as she is but she is proving to them that she is a fighter. On Monday they are going to attempt another extubation, we are extremely nervous about it but hope it goes well so please say a little prayer for her.
Here is a list of Gemma's progress:
-Longer alert periods.
-More range of movement (she can tilt her torso and head, pull her legs in, lift her legs against gravity, spread her toes and even do little kicks!). Physio is considering casting her legs but we might have them hold off.
-She has moved down to just 'pressure support' on the ventilator, which means that she is initiating all of the breaths herself (she needs the ventilator for her pressures - to keep her lungs expanded - but there is a machine that she might be able to graduate to that does this without being intubated).
-She has been free from all conditions (edema, pneumothorax, chylorthorax...etc) and all IV's and lines for over a month and a half.
Gemma is the third oldest baby in the NICU of over 50 babies, the oldest above her are 8 & 12 months! we are hoping and wishing for the day that it will be our turn to go home.
Thank you for all of your continued thoughts and prayers.
Love Amanda, Charlie & little miss Gemma Violet
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